Table of Contents
- Domain One (16 Readings)
- Domain Two (1 Reading)
- Domain Three (19 Readings)
All of these readings are linked to in the back of the Body of Knowledge.
We open with a cautionary statement on demographics. Throughout this article, the authors will repeatedly emphasize that more practical data needs to be collected regarding the prevalence of disability and the living conditions of Disabled people, as well as the efficacy of the programs that are on the books in different nation states.
How many Disabled people are poor, and how many poor people are Disabled? There's a high correlation, but we don't know how high it is internationally. Disabled people are less likely to be employed and Disabled children are less likely to go to school, especially in developing countries. Inaccessible employment and education options exacerbate this state of affairs, but not all barriers are physical: attitudinal barriers concerning the capacity and worthiness of Disabled people also lead to troubling outcomes.
The UN has identified various kinds of coverage that support three stages of life. Care/support benefits (additional budget to cover AT, support workers, and rehabilitation) should be provided throughout.
A child disability benefit should be provided to a Disabled child's parents through their childhood.
Disabled adults should have access to income replacement benefit, disability-related costs benefit, partial or full disability pension, and employment injury compensation.
Older Disabled adults should have access to an old age-pension in addition to disability-related costs benefit.
Comprehensive coverage is not the same as 'effective coverage.' A program may be comprehensive but it's only effective if Disabled people know it exists and can be accepted into their program. Apparently, only about 28% of people with severe disabilities receive disability benefits, with South-East, Central, and Southern Asia having particularly low percentages.
The authors note that "notable strides" have been made since the CRPD, but the numbers speak clearly for themselves: More work is to be done.
When coverage is adequate, disability benefits are sufficient to guarantee income security.
Many countries, however, purposely set disability benefit values below the minimum wage in order to avoid any potential negative impact on the employment of persons with disabilities
Apparently Uzbekistan and Brazil are the best when it comes to this. Speaking from my perspective, it is not uncommon to hear, especially from Disabled people in America and Canada, that one cannot live off of disability benefits provided. There are also many people who lose the ability to qualify for disability benefits if they get married, if they receive gifts of money, if they hold a part-time job or do gig work. The support offered is highly conditional, meaning that Disabled people cannot supplement inadequate resources lest they risk losing all the benefits they are granted. People in this situation are trapped.
Another hole people can fall through is when their disability is not recognized as such. In places like India and Japan, as we've learned from other readings, the actual percentage of Disabled people is estimated to be higher. In India, this may be due to the fact that only a limited number of disability types are recognized.
Disability assessments and knowledge of disability programs stand in the way between Disabled people and these benefits. Shifting eligibility criteria compounds the problem.
Recent disability social protection reforms have concentrated on removing benefits for persons who have disabilities but a significant capacity to work.
The authors note that doing this effectively results in less Disabled people in the labour force. They note that Australia and Ireland have tried to combat this progressively; Australia allows pension receivers to work up to 30 hours/week without losing the benefit. These efforts have been more successful in increasing labour participation than reforms that attach benefits to participation in training and job-searching activities.
The article concludes with a call to research the impact of disability benefits on a global scale, and recommends that whatever social protections offered to Disabled people should not hinder the larger goal of social inclusion of Disabled people in the workplace and in public life.
I think this article's conclusion operates from a rehabilitation first mindset that prioritizes the health of the economy over the quality of life of Disabled people. The article's conclusion should finish with a call for effective, comprehensive, and adequate coverage provided to all, but perhaps the authors shy away from this in recognition that this is a large jump ahead from what many developing countries are able to procure.
It's a pragmatic conclusion and non-preachy conclusion, but I think they could have crafted a similar idealistic call using the CRPD and SDG frameworks that would still come across as motivating and realistic.
This document has an easy-read version, good to get a gist of the general argument before you jump into the statistics and paragraphs.
It is estimated that only 10% of Disabled children in low-income countries go to school. The main argument of this paper is that access to assistive technology is a major reason for this statistic. They emphasize assistive technology as a "precondition for achieving equal opportunities" and that the right to assistive technology is enshrined in the CRPD and Convention on the Rights of the Child, with particular reference to Article 23 of the CRC.
Assistive technology helps Disabled children with mobility, vision, hearing, communication, and cognition. Children who use AT have higher confidence and are viewed with 'better attitudes from community members.' It also may reduce broader economic burden from formal support services or caregiver responsibilities.
The global need for AT has not been identified statistically. For example, the number of people who need hearing aids and the number of people who have hearing disabilities is not the same.
Current barriers to getting AT include financial barriers, lack of national programs, lack of awareness of AT solutions, lack of regional supply, and inaccessibility that might make the AT less effective.
The WHO recommends that AT provision programs should be developed under the principles of availability, accessibility, affordability, adaptability, acceptability, and quality, and while engaging in international cooperation.
I would have liked if they would have covered something related to how products marketed towards Disabled people or as AT have an enormous markup. It also seems a bit distasteful to imply that AT can be a replacement for more formal service provision. Some clarification on the interaction of support services with AT would have been appreciated, or it may have been better if the scope of this article was widened to the provision of formal services and AT to children.
Under the CRC and CRPD, children have a right to both. They also aren't easily separated from one another. For example, an audiologist might work with a speech language pathologist to determine appropriate technology for a Deaf child. Additionally, all of the suggestions for what characterize good AT provision programs indeed also apply to the provision of formal services.
Content from this section already integrated into my page on Speech and Language Disorders.
Content from this section integrated into my page on Mobility Disabilities.
Orthopedic impairments include neuromotor impairments, degenerative diseases, and musculoskeletal disorders. This article argues that instructors teaching students with an orthopedic disability ought to make their teaching accessible, because it likely won't be accessible by default. It calls on instructors to collaborate with the student's support team to understand how accommodations should be incorporated, to stay creative and flexible, and to take special consideration in hands-on learning settings like labs and field trips.
A lot of this article emphasizes communication with the student's support team, mentors, and individualized education plans, but it doesn't really emphasize the need to collaborate with the student themself. Like, I would really hate if someone just emailed my orthopaedic specialist without my consent or consultation, and assumed my orthopaedic specialist knew how to best accommodate me. No, my experience with that guy is very sour and he is not the best assessor of my access needs (he couldn't even assess my treatment needs properly). The authors of this article need to give the Disabled student more of a role, more voice, and more autonomy in their recommendations here. Especially because the article seems to be aimed at university instructors, where the students are adults.
On another note, orthopedic disability is a great term and really encompasses most of the things that IAAP's Mobility/Flexibility/Size-and-Shape category tries to speak to. I think the IAAP should change the name of this category to Orthopedic Disability in the future.
I have no idea what we are supposed to glean from this source. In terms of applying this to recommended study activities of Domain 1, I see literally zero relevance. Perhaps familiarizing with disability statistics for different countries, but this is a horribly clunky way to do it.
I'm skipping this one. I swear if they ask me 'What are the European Countries with the highest rate of children enrolled in inclusive education programs,' steam is absolutely going to leave from my ears.
This is another non-source. There is no link, and Google searches retrieve nothing. Skipping.
This is a technical document, 86 pages. I recommend reading Annex A where it lists the usage needs, or the skill gaps that people with various cognitive disability profiles might have. I also recommend Annex B, which lists the principles underpinning the project. In the next section, I list each of the principles underpinning ETSI EG 203 350 and compare them to principles we see in WCAG 2.X, the Universal Design for Learning Guidelines 2.2, and the Universal Design Principles.
Very short post on dyslexia, this may be the source for some of the statistics we have seen pushed by the Body of Knowledge. This article acknowledges that dyslexia can be an even more serious issue for people living in countries that use a language other than their native language, or have a lot of language diversity, or frequently use multilingual communication.
Literally no idea what this is doing here since it's just a portal to a bunch of different websites selling courses and programs.
From what I can gather, the IACEP is an organization primarily focused on something called 'Dynamic Assessment' which is a supposedly culture-neutral way to see if children are struggling cognitively. It measures a student's ability to learn a skill in an interactive activity. This is opposed to traditional intellectual testing, which assumes a static intellectual quotient and ultimately fixed capacity.
But if that was the point, this is a horrible webpage to point to. This website assumes you are already familiar with what dynamic assessment is. Highly strange.
Broken link, but I found it on wayback. I found that the material here was sufficiently covered by the notes on intellectual disability that I have in Cognitive Disabilities.
I personally learned one new thing from this article. There's an implication here that if a child had some kind of brain injury at 17 years old, they would be considered to have an intellectual disability. But if a person had a brain injury at 18 years of age, they would not be considered to have intellectual disability, but maybe just brain damage. I am curious as to what the formal diagnosis would be in such a case.
This source is more than twenty years old at this point.
At the dawn of a bunch of new innovation happening in the field of tech, this is a paper that speculates as to what new technology can do for people with cognitive disabilities. They also include 'severe and persistent mental illness' in this category.
Under the 'Personal Support Technologies' heading, they speculate on the efficacy of interfaces that can guide a person to do various daily living, vocational, or educational tasks. They also talk about potential advancements in AAC. However, they do say that "a wearable data glove has been developed by an engineering student at the University of Colorado that translates American Sign Language." It is misinformation at worst, and a sloppy mistake at best, to include this example. It feels like every other year some engineering student makes some glove or program to interpret 'American Sign Language' when all it does is sometimes get some fingerspelling right. We're in the LLM age and still, we haven't gotten at all close.
They also acknowledge the technology gap between the Disabled and non-Disabled population, still a persistent problem (especially on an international scale), but not to the same extent as it was in 2001.
Under the subheading 'Assisted Care Systems Technology,' the authors talk about smart houses that can care for aging family members and people with cognitive disabilities, including speculation on how effective such systems could be made with machine learning. They also talk about 'smart transportation' systems that could be integrated into public transportation, as well as trackers that can be planted on older adults to prevent them from wandering. Personal robots are suggested as a way to fix the anticipated surplus of beds in nursing homes. VR is explored as a way for people with cognitive disabilities to gain daily life skills and vocational training in a safe setting.
The vision that this paper puts forward, though it comes across as 'optimistic,' is actually quite disturbing at times. It seems to want to point out every single juncture at which the provision of face-to-face care could be automated away to robots, task assignment devices, and even smart homes that do maintain themselves. The systems that these researches suggest should be accompanied with plenty of caveats underscoring the essential human task that care provision is (it's incredibly valuable work, and the support providers who do it deserve to earn so much more than they do). I would have appreciated some skepticism or critique here, or some other indication that the authors didn't see disability merely as 'a problem that can be fixed if we throw enough robots at it.' I have yet to read Against Technoableism but I feel like the speculative 'optimism' of this paper includes arguments that would be broadly classified as technoableist.
I suppose I need to back that accusation up slightly more. This article mostly frames the group benefitting the most from this kind of technology not as the people with cognitive disabilities, but the relief of 'burden of care' for family caregivers and for the nation state's economy broadly. The implications that more independence among people with cognitive disabilities leads to more people with cognitive disabilities being able to enjoy all their human rights is the argument that should have at least been pointed to. There is an argument to be made here, that emerging technology can help facilitate the independent living movement and the deinstitutionalization movement, which were front-of-mind at the time of the article's writing. But that is not what is being celebrated throughout the article. It's about cutting costs, reducing perceived burden, and minimizing risk.
It's also a very old article and I really do wonder why the IAAP included it, given its very speculative nature. I'm sure there are articles out there that are far more evidence-based.
This is a list of EU-funded research projects that are meant to be directed at developing tech for people with cognitive, learning, and neurological disabilities.
So the page lists out a bunch of different projects and links to all of them. Unfortunately, every single link is broken. Don't you worry. I dug them all up on Wayback.
Another broken link. The amount of broken links is frankly undignified.
The biggest takeaway from this slide deck is that it proposes different functions that assistive technology for mental health might have.
The slide deck gives a bunch of examples of apps, many free! that you can download and use today.
Another broken link. Just speaking of accessibility for mental health and cognitive disabilties, these broken links really drive a wedge through me. Not to be dramatic, but I do feel like I'm being sawed in half with every new link that turns out to be broken.
Material here was basically covered under Disability Etiquette using other sources. It does talk about the End the Word campaign, which is another part of historical context.
First reaction is a gut-drop. I have a Mastodon thread that got picked up and passed around a bit where I complained about the usage of dyslexia simulators. From that, some folks pointed me to resources that showed the very negative effect that so-called "disability simulators" have and I was even exposed to one unfortunate "autism simulator" that made me absolutely reel.
This article opens with the statement that three 360-degree films were developed as an exercise in "increasing awareness" amongst the non Disabled population and promises good results. It also has the keyword tag "empathy exercises" which puts me instantly on high alert. Let's see how bad (or good?) this is.
Eftring and Kjellstrang, the authors of the article, are actually aware of the 'Crip for a Day' article that reports disability simulations lead to increased feelings of confusion and stigma, among other things. Eftring and Kjellstrang suggest that the reason their project was successful lies in the fact that their 360deg immersive films focus ultimately on the solution and accommodations that would ameliorate the situation, rather than the "disability simulation" itself.
Unfortunately, the videos that this project created are not findable online. They do include this excerpt regarding some of the content, however
When editing the pilot film, some effects were added, including noise from the traffic outside and when a person eats crispbread and a red beating heart with changing frequency, indicating stress level. The film also included thought bubbles to visualise the thoughts of the person at the centre of the scenario.
The fundamental issue is that simulations really, really fail. Thought bubbles cannot capture abstract thoughts. A red beating heart cannot actually show you what stress looks like or feels like. It will always be half-baked and bad and even when it's good, it will only illustrate one person's way of perceiving things. To pretend otherwise is to give non-Disabled people the impression that they know more than they actually do.
When "disability simulators" are developed, I believe that it should be entirely spearheaded by one Disabled individual given full artistic freedom. At the very least, Disabled people should be in charge of it. But Eftring and Kjellstrang's methodology was to solicit kinds of scenarios from Disabled folks, and then do all the artistic work themselves with a team of non-Disabled people.
Imagine if a group of white cisgender men did a half-day fact-finding mission with a focus group of women trying to figure out ways that women feel the workplace didn't accommodate them. Imagine if they contracted a focus group of woman for an afternoon, then proceeded to turn some of that feedback into an immersive 360 simulator of 'what it's like to be a woman in the workplace,'. Imagine if they then showed the simulator to a bunch of cisgender men in middle-management. It's a ridiculous prospect.
Get your goddamn empathy by listening to people talk about their experiences, don't try to make some shoddily edited simulation. The IAAP should link to testimonials of what it's like to be a cognitively Disabled person in modern workplaces, and not this bullcrap.
The Buddy project's main deliverable was to create a cognitive-friendly app where people with intellectual disabilities and other cognitive disabilities could view their options for assistive technology. The Buddy project identified a barrier, in that most cognitively disabled people received assistive technology passively through their support network, and instead wanted to create an experience where people with cognitive disabilities may browse the options for themselves, and use the app independently.
In the Buddy project's final report, they detailed several steps they took to make their platform more friendly. For example, user testing revealed that email confirmation was too confusing at user sign-up. Instead, Buddy project used a Honeypot strategy to try to combat bots registering accounts en masse, which allows people to create an account without verifying their email. Another step they took was different methods to assess user needs. Users could either fill out a multi-step form, or complete a series of minigames to assess what kinds of AT might be suitable to recommend to them.
Nine 'user need' areas were decided on; they range from reading to calculation to memory and time management. The Buddy platform annotates each of the entries in the AT database with one or more of these user need areas, and then tailors the experience to each user using the assessment data.
Extensive usability testing involving people with disabilities is a real win in this project.
This is listed as a Domain 2 supplement. Though there's a few materials here in this toolkit, I think the most salient resource that is being pointed to is the package titled, "Communicating the case for a stronger commitment to digital inclusion in cities". I believe this pairs best with the notes we've already taken on the Benefits of Accessibility.
The package details a bunch of points, accompanied with statistics, that one can use to selectively build a case for the inclusion of digital accessibility within city planning, though the arguments are applicable to basically all domains.
Here are points they made, quoted verbatim.
- Persons with disabilities are significant drivers of city economies.
- Older persons are also significant drivers of city economies.
- ICT accessibility supports employment rates in cities.
- ICT accessibility benefits all citizens.
- Cities that commit to ICT accessibility are technology leaders.
- Persons with disabilities have worse socio-economic outcomes.
- The UNCRPD recognizes ICT accessibility as a basic human right.
- ICT accessibility can support the right to participate equally.
- Persons with disabilities have the right to participate equally.
- Cities can be disability rights leaders.
- Commitment to ICT accessibility provides real technical benefits.
- Digital accessibility offers cost savings.
- Accessibility improves maintenance processes and efficiency.
- Reduction of server load.
- ICT accessibility is not expensive for cities to implement.
For city planners, arguments like 'Cities can be disability rights leaders' blur the distinction between traditional business-case and human rights arguments for ICT accessibility. A novel argument that I haven't quite seen before is the one regarding 'reduction of server load,' where it is argued file size of each page is reduced when made accessible, and that accessible websites can be browsed by users with low bandwidth connections.
Broken link, not a good start to the day. The wild thing is that some of these broken links have been broken since before the BoK was updated in October 2023. This link, for example, shows signs of broken-ness starting in March 2022.
The Employer Assistance and Resource Network, or EARN as they are called, emphasises that it is the employer's obligation to provide an accessible application process and to accommodate Disabled employees. These are required under the ADA.
They also cover Section 508 obligations to make tech accessible, and point to resources that can help business owners achieve accessible physical and technological environments.
EARN's most important contribution is how they go about emphasizing attitudinal barriers, which isn't something we've seen a lot. We saw a little bit of this in the charity model of disability, and a little bit in Disability Etiquette.
Attitudinal barriers include positive assumptions and generalizations, and some have to do more with the culture around disability. EARN names classic attitudinal barriers such as inferiority, pity, ignorance, and backlash. But they also name these:
The ITU is the International Telecommunication Union. This is their report on the state of ICT accessibility amongst their member states with respect to a few ITU Targets. They note which of their members have signed onto the UNCRPD, the UNCRPD Optional Protocol, the Marrakesh Treaty, which have implemented anti-discrimination laws, recognized sign languages, mandated accessibility for websites and electronic communications. They also note which of their members provide accessible time-based media features, like captions, audio description, and sign language interpretation.
The majority of the document outlines different existing frameworks for ICT Accessibility implementation, and showcases examples of successful implementations.
Their goal is to have 'enabling environments ensuring accessible telecommunications and ICT' established in all countries by 2023.
To this end, they make a long string of recommendations at the end focusing on all the areas I've already mentioned, alongside calls to create capacity in academia, industry, for strong monitoring, and for more training capacity to be emphasized by policy makers. They basically call on member states to continue their efforts implementing the CRPD and various EU related regulations and directives, while also working with and involving Disabled people.
I'm confused by the relevance of this article. 'ICT-enabled coordinated service delivery' essentially translates to whenever multiple bodies collaborate together in the delivery of social programs. It does seem like an extension of 3F (organizational management,) however this article is completely based on the public sector.
Under the heading, 'critical success factors,' they agree upon elements of management essential to delivering coordinating services, and it mirrors slightly what we saw in the organizational management section. Just look at some of their major points:
Content from this article was covered in the Cyprus and Denmark sections in the National-Level Standards notes.
This PDF is 100 pages long. We're going to look at the Executive Summary and Conclusion.
The primary documents that are being compared are the CRPD, and the Employment Equality Directive (EED). To date, there is no general anti-discrimination directive in the EU. The authors are concerned about the extent to which the EED and the CRPD are in line with each other, the extent to which EED provides coverage of the CRPD, and the points where they diverge.
They emphasize this is super important because member states in the EU might be under the false impression that in tranpslanting the EED, they have met their obligations for equal employment under the CRPD (to which all member states are ratifying bodies: they all ratified independently in addition to ratifying as the EU itself).
The report basically goes on to say that EU law doesn't fully implement the CRPD and this ought to be changed at some point. Additionally, the CJEU has the opportunity to make future rulings that are more in line with the interpretations and spirit of the CRPD, and the report encourages case law to move everyone further in the direction of CRPD-based interpretations.
They also note that a general equality directive extending non-discrimination beyond the domain of employment would be a nice thing to do.
Material here was covered under Africa: Regional Standards
The EU has created its own internal monitoring framework to monitor EU competence with its CRPD obligations. This does not replace national-level monitoring frameworks, which also exist.
They are essentially a working group bringing together the European parliament, European Ombudsman, EU agency for Fundamental Rights, and European Disability Forum. They meet twice a year, there's a chair and a secretariat. All the different agencies have their own responsibilities regarding monitoring, promotion of the CRPD, protection of the CRPD, and they all set their priorities together year after year.
Material here was covered under Asia: Regional Standards
This is a review of all the international norms regarding disability prior to the CRPD. This is a good article to read if you want to sort of imagine the problem that the CRPD was meant to address. There's a lot of things written but practically no legally binding things, despite things like the Decade of Disabled Persons.The one exception might be the Convention on the Rights of the Child article 23, which focuses on the rights of Disabled children specifically.
Here is basically a list of what existed prior to the CRPD in terms of things that could be enforced:
Additional Programmes mentioned, unenforceable
The shift to the social, human rights-based model started to be seen in 1982 and picked up from there.
Material here was covered under Marrakesh: International Standards.
This fact sheet actually covers the International Bill of Human Rights, which consists of the UDHR along with the International Covenant on Economic, Social and Cultural Rights (ICESCR) and the International Covenant on Civil and Political Rights (ICCPR), with two optional protocols appended to the latter. The first optional protocol provides a complaint mechanism. The second optional protocol prohibits the death penalty.
The UDHR was conceived alongside a vision for some form of implementation mechanism, first called a 'convention,' later renamed to a 'covenant.' The UDHR itself was completed first, and the two Covenants were introduced later. Much later. There was about a 25 year period where the UDHR was the only international standard for human rights.
So, to re-emphasize, the UDHR is not in and of itself a legal obligation, while the Covenants are explicitly legally binding upon the states that ratify it. This also means that the UDHR is "truly universal in scope." It is viewed as being applicable to every situation for every human being, regardless of whether a jurisdiction has or has not formally recognized it. The Covenants, on the other hand, are only legally binding on states that have ratified them.
Pair this with the other Conventions, that also take from the spirit of Universal Declaration of Human Rights. The implications of the UDHR are enshrined across these instruments, and embedded into national and regional legislations.
Material here was covered under France: National Standards
Material here was covered under India: National Standards
Material here was covered under Japan: National Standards and Sweden: National Standards
Material here was covered under Korea: National Standards.
Here is a table where we can easily compare laws and policies available across countries. Additionally, one can browse the countries and regions available for more detailed information .
On larger screens, you can browse all the countries through the sidebar. On smaller/zoomed screens, the sidebar collapses into a hamburger menu and it's very unintuitive. The hamburger menu is basically the first item in the tabbing order, but it opens in the main content underneath the site navigation so if you're tabbing or using a screen-reader, it can be quite disorienting.
This page is only updated through user contributions, so a large portion of it appears to not be up-to-date. Especially considering the overhaul that EN 301 549 will bring to harmonizing standards not just in the EU, but in 'canada' and Australia, might be best to check in on the websites of governments. Laws are changing rapidly right now.
Speaking of changing laws, it is still uncertain whether Section 508 will still have any salt at all through Trump's second term.
This is just the full text of Section 508. See Domain-Specific and Procurement Law, or ICT Regulations and Standards for more on Section 508.
I realized that I didn't know how Section 508 was enforced. It turns out that people should file complaints directly to the offending agency. The Access Board encourages all government agencies to include a web accessibility policy somewhere on the site. Here's the Web Accessibility Policy from Customs and Border Protection as an example.
Material here is basically covered in ICT Regulations and Standards.
Old article from 2003, clarifies that under the ADA, services and programs provided by State and local governments must be accessible. Has some classic examples of web accessibility blunders and points to some resources. Goes to show that digital accessibility has been around for a long time. Even Skip Links have been around for a long time!